Adult Tonsillectomy – Don’t Do It!

July 13, 2009 at 7:55 pm (Uncategorized) (, , , , , , )

It’s been a week now since a surgeon sliced off my tonsils and carved out my adenoids, and nobody’s warnings would have sufficed.

A few years ago, I had the surgery scheduled, but the personal insurance plan I had refused to preapprove, so I didn’t do it, even though my otolaryngologist said such surgeries are rarely denied because “no adult would be crazy enough to go through with a tonsillectomy unless he or she really needed it.” His words haunted me but his logic wasn’t compelling enough for me to risk being screwed over by an insurance company (turns out I was right- I spoke with someone there who said they’d probably have claimed it was a preexisting condition). So I waited. When I found out I was being laid off (after a bout of strep and two ear infections this spring), I decided this was the time. So these are the things I knew: The recovery is longer and rougher for adults than for kids.  I’d have a sore throat for a while. I’d be eating soft foods for a week or two, then I’d have to avoid spicy stuff and rough edged things, like chips, for a while after that.

What I didn’t know:

That the anesthesia would leave a disgusting taste in the back of my throat for the whole first day.

That my tongue would be numb for hours after the surgery.

That while days one and two would be horrible, they would be deceptively simple compared to days three and four, because that’s when the earaches and migraine-level headaches kick in. (I have since learned that adenoid tissue shrinks by adulthood, but mine did not, and the adenoid removal is what caused the ear/headaches).

That hiccups and sneezes would cause a sharp pain that would radiate to my ears and linger like someone kicked my throat in the crotch. (For the purposes of this imagery, my throat has a boy crotch).

That the idea of “liquid narcotics for pain” sounds like a good plan after tonsillectomy, but in reality, the stuff (percocet) is worst than the worst cough syrup imaginable and stings going down. It stings a lot. And since it’s hard-core, taking it with an empty stomach causes nausea, but the pain prevents consumption. See, it’s a catch 22.

That you don’t really get to eat ice cream all the time. Everyone always you’re lucky that you get to eat ice cream all the time, but the truth is that the ice cream is too cold. In fact, Jell-O is the best thing because it’s cool but not freezing. Alas, Jell-O is not enough to have in the stomach to help with nausea. Luckily, the good people at Glenmark Pharmaceuticals make a knock off of the anti-nausea drug, Zofran (which is still remarkably expensive, btw). The only downfalls: it tastes like hairspray and it causes headaches.

So after several days of nausea and pain, the hunger really kicks in. Some nice people brought me a vanilla shake from Kopp’s, and brought themselves dinner– burgers, fries, and onion rings. And OH MY GOD, those onion rings smelled so amazing to me. I wanted to snatch them all and damn the consequences! Luckily I refrained.

Now it’s been a week– I feel better; the pain is reduced to strep-like sore throat, which is an enormous improvement over “someone cut off living parts of my flesh and sent me home two hours later.” I’m at the point now where I feel well enough to notice that my hair needs to be washed. I’m also well enough to not only mind that the scabs in my throat feel like a giant hairball, but to be really grossed out by the feeling that I have a giant hairball.

I better never get another damn strep or ear infection. And I’ll tell that to the otolaryngologist to his face tomorrow at my follow-up appointment.

22 Comments

  1. tpgoddess0103 said,

    Yikes! I’ve been following your tweets and hoping like mad for you that each day will get better! Who knew it would be so harsh? They always made it sound so simple when we were kids. I came from the generation when tons of kids had theirs removed at the slightest sniffle. But my mom was a huge doubting thomas about the whole thing and wouldn’t let them touch me which in the long run turned out just fine. Still, seems like all my friends had them out with no nearly that much post-surgery pain/recovery. Guess it’s like Chicken Pox which is about 1000 worse as an adult.

    Anyway, I am glad you are seeing a light at the end. And yes, it damn well BETTER have worked!!

  2. Denise said,

    Thanks!
    From friends I’ve chatted with, age 15 seems to be the ceiling for tonsillectomies that don’t really, really suck.

  3. Johne Cook said,

    If you Tweet this, stick with “(For the purposes of this imagery, my throat has a boy crotch).” and then supply the link. Trust me, you’ll get hits. ;)

    [Waves. Wish you were here. Work is too quiet.]

  4. Peggy said,

    Ah, I’ve been waiting for this tirade for DAYS, Denise, so thanks for posting! I’m sorry this has been such an ordeal. I actually spoke to my Parisian friend who had his tonsils out some years ago, but also as an adult, and he said (last week) that it wasn’t so bad, but I remember what a baby he was the first day (I missed the other days, having left for Paris.) Have you been able to eat pudding? That, at least, has some nutritional value, like the shake from Copp’s. Glad it’s improving, and I hope Mr. OTO says your throat is healing nicely. Keep me posted. If you need anything, let me know. Peggy

  5. Kittridge said,

    That really sucks, dude. Sorry.

  6. Casey said,

    Hi, there.. I just found your site while googling “ear popping after tonsillectomy”… I too just had my tonsils removed, on 7/7/09. I’m 34 years old.

    No way could I have been prepared for what was going to happen to me. And, not only do I have a high tolerance for pain, but I have been through several surgeries, one being breast reduction surgery 13 years ago. Tonsillectomy as an adult is like the Chuck Norris of surgeries… it’s one Bad Mo-Fo.

    I barely remember the first week, I just remember that I couldn’t sleep laying down, so I had to sit up and lean to the side. Then waking every two hours because either a) the pain meds wore off or b) the pain meds wore off *AND* I was parched… that certainly did not help.

    Unfortunately, I wasn’t under enough pain medication, which led me to not hydrate myself as much as I could have (or maybe it was the fact that any type of Gatorade I would try to drink felt like liquid fire burning my throat), and after a week I ended up in the ER for dehydration. Also, people always say that you can eat ice cream. Bull! Ice cream is actually bad for you, as the dairy can create mucus in your throat… which also contributed to the cause of my ER visit. So… the hospital fixed me up quite nicely, but I could have done without all that extra pain.

    Now I’m day 16 post-op… The pain right now is like one would have if they have a hard core case of strep. Just annoyingly sore. And, they had to take my adenoids too… so whenever I try to lay on my back, the breathing through my nose gets cut off. When I wake up in the morning, after breathing through my mouth all night, I feel as if I managed to suck in half the bedroom into my mouth and an anvil. It takes me 30 minutes in the morning to wake up, courtesy of FlavorIce pops. I have a fondness for the green ones.

    I’ve been back on regular meals for about a week, but for a while there I was fantasizing about pizza on a damn near sexual level. One day when I was super-stoned on my meds after the ER visit, I started to make a list of all the pizza places I could go to when I could eat again and damn if I wasn’t going to have pizza for breakfast, brunch, lunch, dinner, and fourthmeal (that one would be Mexican Pizza @ Taco Bell).

    Also, I’m starting to get the repercussions of being on antibiotics and pain meds on the insides.. this is one downfall of being a chick, just about any type of medicine seems to distrupt the “ecosystem down there”.

    Sorry for my ramblings, I just was so damned excited to find someone that is going through this at the same time I am. Hope you’re feeling better, and if you can, let me know how your progress goes!

    ~~ Casey, Dayton Ohio

    • Denise said,

      Hi, Casey!
      Wow. What you’re going through sounds a lot like what I went through but worse. You’re right about the sleeping and the waking up constantly & being parched. God, it was awful. I had my surgery the day before you and I’m doing much better. My only real complaints right now are that things don’t taste right yet and I’m still worn out and so, so tired.

      The taste issue is probably related to thrush, which is a common side effect of not eating for a while. I didn’t want to get into it because it’s gross and personal, but since you were willing to share so much, what the hell, right? Just like the vagina, yeast and bacteria usually live in harmony in the mouth, but lack of food causes a decrease in bacteria so the yeast goes wild. That’s right, sisters: I had (have?) a yeast infection of the mouth. It makes me wonder if anorectics get this. Anyway, the point is no one should kiss me! Is that possibly the most disgusting thing you’ve ever heard? My doc presribed this nasty medicine that I swish around three times a day and the fur on my tongue is decreasing, happily, but many foods and beverages STILL don’t taste right. I’ve tried beer once and all I could taste was bitter. Diet Coke tastes off, vegetables taste like dirt. And I really like food, so I’m bummed . . .

      Shoot me an email at marzipanjoy@yahoo.com and we can continue this dicussion off of here, if you like.

      Peace out!

    • Mercy said,

      Casey, I realize you posted this forever ago but I had to reply because you are in a very unique situation; having both a tonsillectomy and a breast reduction. I am 21 and I ‘m on day 10 of having my tonsils out and while it sucks quite a bit and I’ve lost 20 lbs in 10 days because I didnt eat anything that was not water or ice until day 6 but the pain has been manageable. It’s admittedly one of the more painful things Ive gone through although not the very worst. ( I’ve dislocated my shoulder in High school and didn’t get it set or start PT until two weeks later, and just three months ago I dealt with three slipped discs in my spine. However, I am scheduled for a breast reduction in early may and I was wondering how the pain rivaled the tonsillectomy. Do you think I’ll be okay pain wise after going through what I’ve already gone through? :) Thank you for your time!

      • Mercy said,

        I meant Denise :) sorry, liquid percocet :)

  7. L Kolba said,

    I just had my tonsils out 6 days ago and went searching for information from other SURVIVORS. It’s been hell for me too. They wouldn’t give me liquid painkillers of any kind, but tablets I could crush and mix into yogurt, which still tastes horrible- but probably not as bad as the liquid percocet. They originally gave me T3′s, which made me sick as a dog. You think coughing and sneezing and yawning hurts post tonsillectomy? Try vomiting. Yeah. True story. Try vomiting like fourteen times. Finally I went to the emergency at my local hospital, as it was the weekend and my only option. They suspected infection, sending me home with antibiotics. This didn’t help anything, and I had to stop taking the T3′s because the vomiting was causing too much pain to handle. I couldn’t take any painkillers because they strongly warned against anti inflamitories and all tylenol products were making me vomit, including extra strength! No painkillers for one whole day was hell. Then on Monday of this week, I got in to the doctor who did the surgery and was fuming to learn tha this receptionist whom I called on the Friday afternoon neglected to tell me there was another eat/throat/nose doctor on call for just such problems- so I suffered all weekend without needing to. After losing my cool in the doctors office and breaking down in tears of frustration and pain, he perscribed percocet- but again in tablet form. Mashing the tablets up into yogurt again worked fine and it didn’t taste half as bad as the Tylenol cocktails, so I was glad for that. Because percocet is still a narcotic, they warned of more vomiting. So I threw some gravol anti-nausea chewables down, mixed into more yogurt and prayed to every god I know the name of for sweet relief. Within five minutes I had relief from the splitting ear aches, throbbing headaches and incredibly sore scabby throat and. painful (to a point of almost numb) tongue. It was a Christmas miracle in September. The painless bliss lasts only for an hour or so, before things gradually go back to terrible again, when I take another dose of the painkillers. For the time inbetween, I have made use of frozen peas, placing the bag of peas on my pillow, then laying my head on the giant ice pack so that it cradles my neck and throat, up to my ear. I switch sides periodically. The whole ordeal has been awful. It’s opened my eyes to the importance of researching and asking questions, rather than just assuming and trusting medical professionals with my body. When my brother had his tonsils out as a child, I remember him playing and laughing and eating popcicles afterword like it was no big deal. Today as a twenty-something adult, I’m in so much pain, it even hurts at times to sip water. I had NO CLUE what I was in for when I agreed to this surgery, and my doctor/surgeon down-played the recovery process severely. Reading these sorts of blogs online has made me feel better though, and less alone in my horrible recovery. I’ve read about peope even worse off than me, like a 40 year old woman who said she would rather re-birth both her children at once than go through this procedure- if only she had known how horrible it would be. I’m the same as you though- I swear to god, f I get sick with any type of sore throat after this, I will march into that doctors office and punch him in the face so hard his nose comes out the back of neck. STAY STRONG!!

    • Du said,

      Wow, I’m so sorry to hear of your terrible ordeal! If it’s any consolation, I haven’t had any ear infections or strep since my surgery (14 months ago)– only minor soar throats from thirst that go away quickly.

      • Marg said,

        I too am sick and tired of feeling like crap. It hurts, and it hurts all the time. I had my surgery one week ago. I now hate popsickles of any kind and water tastes like shit. Ice chips are the only thing that cools the burning in my throat. I am considering putting a bib on so that I can drool instead of swallowing. I am so desperate for real food that I have started chewing it and then spitting it out – I know it is not going to get past the “burning inferno” but it sure is nice to taste good food again. I was on cycocet and when I ran out, the doctor perscribed T3′s which are not as effective as cycocet. Thanks for your blog and the comments. It is comforting to hear that my pain-filled “recovery” normal.

  8. Tracy said,

    I am 31 years old and 11 days post op. These past 11 days have been hell on earth for me! This is coming from a woman who has had a c-section and breast reduction. The pain is the worst ever!! I am a nurse and never thought in a million years it was going to be this bad!! I had my surgery at 1130am and did not leave the hospital till 730 that night because they couldn’t get my pain under control. They sent me home with liquid Lortab which tasted awful, felt like acid going down my throat and did not help at all. Days 1-4 were just horrific. Couldn’t eat, swallow, sleep or get comfortable. By day 4 I think I was headed down the path of dehydration. Had to call my sister to come by and help me, Not to mention I am a divorced single mom to my little girl. Trying to rest and heal while taking care of a 2&1/2 year old was not smart either. But I think I am Super Woman and can handle it. I had to call the ENT for something stronger so he wrote me an Rx for Percocets/ Ahhhh these are great and helped alot. I was then able to tolerate more foods, soups and popsicles. Warm foods not hot or freezing. Seems this made my ears feel like they had knives in them. The ear pain was almost unbarable. I would sit on my couch with a heating pad on my ears and ice pack on my neck for days. This helped too. The scabs people are talking about fell off in 7 days. It was really gross and I had a nasty smell in my nose for 2 days. Not sure what that was. Ewww. I do think drinkly lots of fluids really helps keep your body and throat hydrated and able to heal quicker. Something you just have to make yourself do!! I am off work for 2 weeks and very thankful for that. No way could I have gone back in 1. Week to pain is about a 2-3. Seems the more I talk the more it swells back there and starts to hurt again. Hurts to cough or yawn. I am starting to feel more human now and slowly adding back in solid foods, but very slowly. I did eat a ham and cheese the other day and paid for it for 2 days. I am not gonna rush this and end up back in the hospital, oh hell no!!! Well hope to be pain free soon and wish everyone the best!! Given the chance, would I ever do this again, NO!!!! Just remember, everyone does not heal the same and some people have better experiences than others!! Bad luck just tends to follow me!!

  9. Du said,

    I remember it hurting to yawn and sneeze for a very long time.

  10. AC said,

    I am on Day 8. Basically the majority of scabs fell off last night. My big issues are the hunger pangs and the effects of Liquid Vicodin on a stomach only filled with fluids. It sucks major ass. I don’t just feel stoned when I’m on it….sometimes queasy, sometimes just super weak. I can manage pain with liquid tylenol but then swallowing is much more difficult which means of course that dehydration is a concern.

    All I can do is hope like hell today is my peak pain day/discomfort day (post scab fall-off). I rounded a corner on day 6 -7……hoping day 8-9 is similar

    I just wanted to say/type this somewhere out loud :) Thanks for reading.

  11. Courtney said,

    Oh my god that is EXACTLY what its like I’m on day 7 After it.. Its been a living hell. Not to mention 2 nights ago my scab ripped off because I coughed & there was a rushh of blood so much I was rushed to the hospital. If you might have any other tips please let me know . I agree with you. I better NEVER get strep again =/

    • Du said,

      It’s been almost two years and I haven’t had strep yet, if that’s any consolation. I remember the second week being rough, I’m sorry to say. Best of luck to you, Courtney!

  12. Shaaweennnnnnnnnn said,

    I love this more than anything in the world right now ommmg haha
    I’m currently on Day 8 and I can safely say everything you’ve said is EXACT and I couldn’t have described the horror better
    sadly for me, mine became infected after the first day, so i was sick 8 times (try to imagine being sick with this even once) and i realised after having some water i would puke so i stopped drinking for over 16 hours. After all that dehydration, imagining myself drinking a slush puppy/cold pepsi, a doctor came and told me about the infection and how the reason I could no longer drink even though everyone was like YOURE NOT TRYING YOU NEED TO TRRRYYY ;/ is because i had no gap left in my throat, and the swelling was getting so bad it would have suffocated me by nighttime during my sleep (which was evident from the fact i was struggling to exhale, feeling flesh behind it)
    so anyway after another drip in my hand etc and all that hell I’m obviously having a longer recovery time and it’s ruined my summer holidays and I crave everything. And cravings particularly suck when you know you can’t have any of them (e.g. swimming, slushies)
    If I knew it would be this painful and would have read your post before having it done, I would have cancelled it.

    • Du said,

      So sorry to hear about your experience! How scary!

  13. Afton said,

    I’m 17 and Omg. I just got my tonsils out last Friday so it’s officially been a week. I am DYING for Taco Bell. That will be the first place to go when this is all over. I’m on liquid loratab and let me tell ya. It burns like crazy as it goes down. And it makes me feel so queasy and all I want to do is sleep. I sleep through my alarms to take more medication and when I wake up, I can’t talk, or barely open my mouth. I have to shove ice cream down my throat so that I can numb it enough to take my med. Wednesday I was at the ER because I felt queasy all day and couldn’t hold a single thing down! It was terrible. I have to say the first day after was the easiest. I figured it would be the hardest but it wasn’t. I hope to be feeling better soon. And your comment about sneezing and hiccups was on the spot!

  14. maureen piper said,

    I am 71 years old now. But when I read all these ordeal descriptions I remember being post-tonsil-op at age 18 and the vomiting, the fire, the horrible taste and smell of ether, which sometimes still returns sometimes, like a phantom-limb memory when I eat cantaloupe……. I REMEMBER. But I struggled thru high school with constant tonsillitis. Horrible sore throat and ears all the time. Fatigue. And all that stopped immediately. I think, for me, the ordeal was worth feeling well, feeling energy for the first time in years was worth the weeks of pain and the phantom ghost of smell, too. I don’t think college would have been possible with tonsils in my throat.

  15. Ann said,

    This is why you take painkiller pills and not liquid… it is possible… just cut the pills into smaller pieces and put them in jello. Also Gatorade is always a no. It’s like pouring salt in an open wound. I had a tonsillectomy about 2.5 weeks ago. I’m sorry your experience was so negative, but there definitely are ways to make it better for anyone who is thinking of getting a tonsillectomy and reading this. I hope your situation has improved since then.

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